She slept in hospital intensive care units and navigated family outings with a breathing machine – all for her late son, who ...

"Monumental" is how Ashley E. Webb, MD Assistant Professor, Department of Pediatrics, Division of Child & Adolescent Neurology Neuromuscular Program Director, UTHealth, University of Texas Health ...

More than two years after the Government committed to adding SMA to newborn testing, families are still waiting ...

Infantile spinal muscular atrophy (SMA) is a neuromuscular disorder that affects the nerve cells in the spinal cord. It causes muscles to weaken and limits muscle movement. SMA is a rare condition.

A couple whose son died from a rare genetic condition are encouraging others to take part in screening which they say could ...

"Managing pain in patients with SMA begins with the recognition that there are predictable etiologies leading to pain in SMA and investigating them during each medical visit is important to implement ...

The 34-year-old singer recently shared the devastating news that her children have Spinal Muscular Atrophy Type 1, which ...

What is SMA? The rare genetic condition that Jesy Nelson’s twins have - Former Little Mix star revealed her twin daughters had been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 ...

People with spinal muscle atrophy (SMA), an inherited neuromuscular disease, usually experience muscle weakness that impacts movement. New research suggests that electrical spinal cord stimulation ...

ZION Foster has shared a candid post about “traumatic moments” and “stress” following his split from Jesy Nelson. The couple ...